Caring for a child with lupus

In 1902, an 11 year-old girl called Ethel entered the care of The Children’s Society (then known as the Waifs and Strays Society). Ethel and her mother were homeless; they were found by police in West London and taken to a police court, where Ethel was placed in the Waifs and Strays Society’s Beckett Home in Meanwood, Leeds.

When Ethel arrived at the Beckett Home, it was discovered that she was suffering from lupus.

Letter from case file 9103 about the health of the child, 1902

Dear Sir

I am enclosing
warrant etc for [another child]
& I thought I had better
mention that Ethel [surname] 124
is suffering from lupus
though there was no mention
of it on the doctor’s certificate
that came with her

yours faithfully
L. J. Verren

Lupus is an autoimmune disease, where a person’s immune system can start to attack other parts of the body. Symptoms are wide ranging and can be either mild or severe.

Ethel was given case number 9103, and in her case file, there is a lot of correspondence relating to her health and her numerous stays in hospital.

Letter from case file 9103 about the child's visit to Leeds Infirmary, 1904

Letter from case file 9103 about the child's visit to Leeds General Infirmary, 1905

Dear Sir,

Ethel [middle name and surname] (124)
has today been admitted
(free of charge) into the
Leeds General Infirmary
as she is suffering from
tuberculous ulcers on her
finger & instep & the bone
requires scraping. I will let
you know when she returns

yours faithfully
L. J. Verren

As you can see, Ethel was also suffering from tuberculosis, although it is not known if this was related to her lupus.

Ethel’s health improved and by 1906, when she was almost 16 years-old, it was thought that she would be able to do ‘light’ work. A suitable job was found for her and she started working in domestic service in Halifax.

Unfortunately, Ethel was not in work for long. It appears that her health declined, making the work very hard for her. In 1908, aged 17, Ethel left the job and went to the Waifs and Strays Society’s Nayworth Cottage Home in Hurstpierpoint, Sussex.

Nayworth Cottage Home was a convalescent home and it was thought that Ethel would be able to regain strength there. However, the medical officer at the home declared that Ethel’s tuberculosis meant she wasn’t suited to a home with other children.

Unable to stay in children’s homes any longer, Ethel went to live with her grandparents and her aunt in London, with the Waifs and Strays Society providing the family with money for Ethel’s medical treatment. The last we hear from her, she is in hospital in Paddington, London.

Ethel’s story is an interesting one. The Waifs and Strays Society tried their best to help her but the correspondence in her file suggests that they struggled with her medical care, especially as they had little experience of looking after children with lupus. Ethel’s experiences were probably not uncommon for the time. As lupus is such a complicated disease, it would be very interesting to compare Ethel’s story with the experiences of people with lupus today to see how medical care for the disease has changed in the intervening years.

Further information about Ethel’s story is detailed in her case file (number 9103).

Living conditions in Edwardian children’s homes

Major-General Baden-Powell visiting the children at Gordon Boys Home, Croydon, c1908

When running a number of children’s homes across the country, it is vital that a good standard of living is maintained in every single home. For The Children’s Society [previously known as the Waifs and Strays Society] one way of maintaining standards was to periodically inspect the conditions in each home.

There are inspectors’ or visitors’ reports for a large number of our children’s homes, dating from the late-19th Century right up to the 1990s. When these reports were created, they were used to check that the children’s homes were running well and that the children in them had a good standard of living. The reports give a fascinating insight into life in the homes, the health of the children, and what living conditions were expected at different points in history.

The following image is a page from an inspector’s report for Gordon Boys Home, Croydon, 1909.

Page from an inspector's report of Gordon Boys Home, Croydon, 1909

This page covers the health of the boys, noting what medical care was available for them and what sanitation was provided. Here it is stated that the boys were bathed every other night, with 3 or 4 boys using the same bath water in turn, but with each boy having his own towel.

Other pages in the report note what facilities were available in the different rooms of the home, the cleanliness of each room, and how the home was run.

Not only do these reports give information about what it was like to live in each home, they can also give some insight into what it was thought worth inspecting at the time. For example, from the above image it can be seen that in 1909 it was thought important that each child had a pocket handkerchief and two pairs of boots. Other parts of the same form check the children had access to a supply of Bibles and prayer books and that grace was said before meals, suggesting that the religious education of the children was considered an integral part of the life in the home.

Conserving children’s case files

Today, we have a guest post written by one of our Project Conservators, Rebecca Regan.

***

Hello, blog readers. My name is Rebecca and I am one of the paper conservators currently working on the Unexplored Riches in Medical History project at The Children’s Society Records and Archives Centre. As Janine, the project archivist, has described in a previous posting, the project has the twin goals of both cataloguing and indexing parts of the archive that can be used to study medical history as well as of preserving the case files to prevent deterioration of the documents. Both these objectives aim to increase access to these records for researchers.

The conservation part of this project started at the beginning of January. Since then my colleague, Julie, and I have been ordering materials and tools, recruiting volunteers, establishing project protocols and, of course, making a start on the practical work.

Cleaning the case files

Cleaning the case files

Cleaning the case files

Cleaning the case files

The earliest case files consist of bundles of folded documents; almost all of them being stored in blue envelopes. Many of these envelopes are in a very poor physical condition. Usually each envelope contains one case file, although sometimes siblings’ files share one envelope.

Rusty paper clip

Rusty paper clip

The contents might be a single piece of paper or several hundred. Once we found an empty envelope; we don’t know why. The documents have almost all been sharply folded, most of them multiple times. Some are fastened with rusty pins or clips.

A few bear the hardened traces of what was once a rubber band. Most of the documents are very dirty. (They are now stored in boxes with lids but clearly that has not always been the case.) Many of the papers are poor quality substrates: innately brittle and acidic. It is difficult to remove the documents from the historical blue envelopes and usually impossible to replace them.

Case file with remains of degraded rubber band

Case file with remains of degraded rubber band

In the short space of time allotted to the project, Julie and I aim to improve the condition of, and accessibility to, as many of these case files as possible. Each case file is treated in this way: we remove the documents carefully from the envelope and then we unfold, surface clean and press each sheet, if it is possible to do so safely. Some documents we have to relax through humidification before we can press them, because they are too brittle to press when dry. Documents written on parchment (the prepared skin of an animal, e.g. sheep, goat or calf) also require this humidification process before flattening as this material is thicker and less flexible than paper is.

Most of the case files contain only textual documents but we have also found a few photographs which allow us to see the faces of the children described in the files.

Charles North who was in the care of The Children’s Society from 1884 to 1892

Charles North who was in the care of The Children’s Society from 1884 to 1892

We have also come across a few red wax seals with patterns on them. They provided authentication of an official document at the time, but to us today they also look rather decorative. We do not press any document which contains a wax seal as it would, of course, crack the wax.

Wax seal

Wax seal

Wax seals

Wax seals

Once the documents have been pressed, we put them in archival folders which are stored in acid free boxes. So far we have processed over 700 case files.

Case files in old housing

Case files in old housing

Case files in new housing

Case files in new housing

Learn more about medical history

I’m happy to announce that our project web pages are now live!

The link above will take you to more information about the ‘Unexplored Riches in Medical History’ project, where you can find out about the medical records we hold here at The Children’s Society archive and how we are working to make them more accessible. There are also several scanned examples of records containing medical information, such as the one below:

Suggested weekly diet for children, 1934

This is a suggested diet to be fed to the children living in children’s homes. It comes from the ‘Handbook for Workers’, which was a book giving guidelines on how The Children’s Society’s children’s homes should be run. This suggested diet dates from 1934 and is an interesting insight into what foods were eaten at the time and what was thought to be a good diet for children.

Please do take a look at the new project web pages and see what other records we have.

Children’s case files

Another part of the ‘Unexplored Riches in Medical History’ project is to catalogue children’s case files.

A case file was created for every child that came into the care of The Children’s Society. These case files were used by The Children’s Society’s head office to store all their forms and correspondence relating to that child; this makes the files a great resource for researching the lives of individual children, the reasons why they came into care, what their lives were like while being looked after by The Children’s Society, and where they went onto afterwards.

1850 case files have already been catalogued as part of a previous project. Now, the ‘Unexplored Riches in Medical History’ project aims to catalogue even more case files and so make them searchable and usable.

In terms of medical history, the case files contain a great deal of information. Application forms found within the files tend to detail the health of the child and their family as well as giving information about the child’s living conditions and family circumstances. If the child became ill while in The Children’s Society’s care, this is often documented in the correspondence found within the case files, especially if the child was sent to hospital or to a convalescent home.

Back page of the application form from case file 419, dated 1885-1894, giving dates for the child's admission to St Bartholomew's Hospital 'to be treated for her eyes'

The above image comes from the application form for case file 419. On the back of each application form, the child’s case history is noted, stating where the child was placed. In this image, it says that in 1893 the child entered St Bartholomew’s Hospital.

The page says:

Boarded out at Slinfold
under the Care of Miss S John
5 Jan[ua]ry 1885

Miss Maitland
please note
G.N.W.

noted ERM
Jan 6th 1885

October 1893
To go to Bartholomews
Hospital to be treated for her
Eyes

22 October 1894
Gone to service at 13 Bartlour
Road Horsham Sussex

Within case file 419 there is further correspondence regarding the child’s visit to hospital.

This is just one example. There are many other case files that can be used to study the history of diseases and treatments. Because of this, it is the aim of the project to catalogue and index more of our case files. The indexing in particular will make it easier to search the case files for specific topics.

Records of children’s homes

One part of the ‘Unexplored Riches in Medical History’ project is to catalogue the records of The Children’s Society’s children’s homes.

In 1882, The Children’s Society (then known as the Waifs and Strays Society) opened its first two homes; a home for girls in Dulwich, London, and a home for boys in Clapton, London. From that point onwards, the number of children’s homes continued to grow until The Children’s Society was running a whole network of children’s homes in England and Wales.

The Children’s Society continued to operate children’s homes until the late-20th century, at which point it evolved away from residential child care to start working with children and young people in new and more innovative ways.

Now that The Children’s Society’s homes have closed down, their memory survives in the documents and records that they left behind. These records were created during the day-to-day work of the homes and so can shed light on all aspects of the way the homes were run, from anything as varied as the layout of the buildings to what the children ate each day.

Amongst the records of the children’s homes are many items that can be used to study medical history and childhood diseases. For example, the image below shows a page, written c1896-1901, from the medical register kept at St Oswald’s Home For Girls, Cullercoats, Whitley Bay, Newcastle upon Tyne, Northumberland.

Page from a medical register for St Oswald's Home For Girls, Cullercoats, Whitley Bay, Newcastle upon Tyne, Northumberland, c1896-1901

In this register, an entry was made for each child in the home in the 1890s, detailing their medical history. The above entry states:

[The child] – 12 years of age.
Father died of consumption
brother suffers from temporary
insanity. Other members of
family well. Had measles
& whooping cough. Small
not well developed for age.
Tongue clean. bowels regular.
teeth some decayed.
Heart & lungs normal.

Admitted into Hospital. Jan 13th. 01 suffering
from irreg. temp & some pains in the joints.

One of the aims of the ‘Unexplored Riches in Medical History’ project is to catalogue the records from The Children’s Society’s children’s homes, including medical records like the one above. The catalogue will list exactly what records we have for each home, which will make it much easier to use the collection to research medical history as well as a large number of other topics.

Unexplored Riches in Medical History

Hello! For those of you not familiar with this blog, let me introduce myself. My name is Janine and I previously spent a year working on the ‘Including the Excluded’ project to catalogue the records of The Children’s Society that relate to the care of disabled children. (For blog entries about the ‘Including the Excluded’ project, please select the ‘Including the Excluded’ category on the sidebar.)

Today, I would like to introduce you to a project we are currently working on at The Children’s Society Records and Archives Centre called ‘Unexplored Riches in Medical History’. This project aims to catalogue, preserve and make available the records of The Children’s Society that shed light on all areas of medical history. It has been funded by the Wellcome Trust’s Research Resources in Medical History (RRMH) grants scheme.

Four boys giving themselves an injection at St George's Home for Diabetic Boys, Kersal, Manchester, Lancashire, c1950s

The Children’s Society ran a network of children’s homes for poor and disadvantaged children from its founding in 1881 until the 1970s. The records of The Children’s Society document how the work of The Children’s Society was carried out and can help to explain what life was like for children in care during the 19th and 20th centuries.

It may not be initially obvious, but hidden amongst the records are a wealth of primary resources about medical history. One of the main concerns of The Children’s Society was to ensure that the children in its care were healthy and well, and this is reflected in the way it worked and the documents that survive.

From children’s case files that detail the health and vaccination history of individual children, to the records of children’s homes, discussing topics as varied as outbreaks of diseases and guidelines for diet, The Children’s Society’s archive contains a lot of information about medical history that has not yet been researched or explored.

The ‘Unexplored Riches in Medical History’ project aims to make this information more accessible by preserving, cataloguing and indexing part of The Children’s Society’s archive, so that in the future more people will be able to use this valuable resource.

This blog will be used to cover the project in more detail and to highlight just some of the fascinating items that are found amongst the collection.